The IBMPFD Symptoms survey form identifies a number of symptoms of IBMPFD. Completing the form allows researchers to establish a data base to understand rates of degeneration and other factors. The completed form may either be directly e-mailed to Dr. Weihl and Dr. Kimonis; or may be printed an mailed.
The IBMPFD Quality of Life survey form identifies a number of ways the symptoms of IBMPFD can affect one's life. Completing the form allows researchers to establish a data base to understand the correlation between life style and the effects of IBMPFD. The completed form may either be directly e-mailed to Dr. Kimonis; or may be printed and mailed.
The mailing addresses are:
Conrad C. Weihl MD/PhD
Clinical Instructor Washington University School of Medicine
Department of Neurology
660 S. Euclid Ave.
St. Louis, MO 63110
Chief, Div. of Genetics and Metabolism
Prof. of Pediatrics, Univ. of California Irvine Med. Center
101 The City Drive South, ZC4482, Orange CA 92868